Extraordinary People: The Boys With No Skin

Movie"Boy born with rare ‘Butterfly disease’ that leaves him with no skin refuses surgery because he’s scared of dying on the operating table"
Extraordinary People: The Boys With No Skin
NR 46 minDocumentary
Seventeen-year-old Jonathan Gionfriddo was born with the life-threatening disease Epidermolysis Bullosa, or EB. Most people who have Jon's type of EB will die by the age of thirty as sufferers are prone to infections and skin cancers.
StarringJonathan Gionfriddo
DirectorDanny Beck

Movie Details

Original Language:English
Movie Tags:
surgerymedical treatment